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      How to get your questions answered. A few observations, and requests of all members. All folks who come here are volunteers who do this on their own time and their own dime.To avoid burning out our best contributors please follow these guidelinesf you are reading a post and it reminds you of a question you want to ask, start a new topic, if you place your question in someone thread it will be difficult to distinguish your question from the original poster, you will get better results posting a new topic with your question. 1. Before Posting please do a search and see if your question has already been answered. If you find the answer print it out and put it in a file to use as a reference file, I find this helpful myself. 2. If you can not find the answer and you do post a question, please print out those answers and refer to them to avoid duplicate questions. 3. Refer to the Frequently Asked Questions4. Duplicate questions will come up from time to time but the keeping them to the minimum will lighten the load on the regular volunteers.5. Respect folks privacy do not request their personal phone numbers for claims help, it is inappropriate and not why they are here.6. Keep the topics focused on veterans issues, in closing Search first Search ... Ask second.it may save a lot of time or at the very least enlighten you.
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      The following is on my About page, but some have been asking how this all happened. So here is my little story. Tbird US Navy 1983 – 1990 E-6 HadIt.com the website domain registered Jan 20, 1997 the domain is registered and paid for through Jan 21, 2023 at which time I plan to register it for another 15 years Lord willing and the creek don't rise. I guess the best place to start is Jan 1991; I had gotten out of the navy Dec 1990. At my separation seminar, there was a DAV rep Jim Milton he told us to bring our medical records in and he would look through them for us and let us know if we should file a claim with the VA. Well, bless his heart, he opened my medical file, reads the first insert, looks me straight in the eye, and says you will be 50% for the rest of your life and he would file the claim for me. 50% was for surgery I had in the service. True to his word he met with me and talked with me for a long time filled out my paper work and urged me to file for PTSD. I would not file the PTSD claim, nor even discuss it. By Feb 1991 I had moved to the San Francisco bay area and was staying at a friends apartment and pretty much I was just a puddle. In desperation one night I called suicide hot line, I had no job, no idea about going to the VA. They talked with me for a long time and explained to me that I could go to the local VA hospital even if I did not have insurance. Now, I know what you are thinking if I was 50% why didn't I just go to the VA in the first place, two reasons 1, this was Feb 1991 and the 50% didn't come till May and 2, even if it had come through it is unlikely that I would have had the mental acuity at the time to put the two together. I relate this here because it is where so many of our brothers and sisters are coming from, perhaps where you started. Fuzzy and unsure, in pain and sometimes homeless they come to the VA hospital for help. And that is where I ended up. Up to the pysch ward I went, blah, blah, blah, a few days later I was released with a promise of a call from the out patient program, which I would soon be entering. Blah, blah, blah, after many missed communications, and no call backs I was at the Day Hospital everyday M-F. And this brothers and sisters is where I began to learn and formulate my plan for HadIt.com. Veterans, veterans everywhere…I spent a year in the day hospital and about another year at a sheltered workshop before I got back on my feet. So I just talked to veterans everyday waiting for appointments, waiting for prescriptions, waiting for a vet rep and I started to learn the system. While in the navy I was data analyst and had to learn a 5 volume manual and just about anything you were suppose to do was in that manual. So I figured there must be a manual on how to do a VA claim or at the very least regulations. So I found out about the Code of Federal Regulations, United States Code, Veterans Affairs Manuals and so on and so forth. Of course this was 1991/1992 I was living in a tiny studio apartment in a particularly bad neighborhood, working in a sheltered workshop making a nickel per envelope I stuffed throw in PTSD and you will see that it was a difficult task for me to get somewhere where they had copies of these, let alone that they would let me look at. And there was so much knowledge around me, it was like the gold rush in those days, I could just sit on a bench a veteran would sit down next to me a little conversation later I had another nugget, I made copious notes. Phone numbers to call, ask for this guy or that guy he'll give you the straight scoop and they'd slip me a piece of paper with a number on it. You want to read this regulation or that one and another slip of paper into my hand. 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So taking my lesson from the squirrels earlier I started to gather, gather, gather…and learn HTML and work as a marketing systems analyst and work my claim. 1996/1997 major PTSD cork blows and unemployed. Working my claim, working the website. 20 Jan 1997 register HadIt.com domain name right after getting off the phone with the VA and saying I've had it with this. As fate would have it the old DAV board goes down just as mine opens up and folks start to wander in. So HadIt.com has two main components the website which supports the discussion board with links, articles, research resources etc. The website starts to grow, I can't tell you how many times I had to switch servers for space and features. I continue on a downward trend and in 1998 ended up back home in St Louis living in my sisters basement in therapy and working it, I swear I would have swung a dead chicken around my head at midnight naked if I thought it would have helped. The website continued to do great during this time, I just stayed in the basement bought new software, new books, and learned how to make things work and I continued to use this knowledge to make HadIt.com better. My 100% finally came through from the VA and I had a friend who is an advocate who helped me thru my SSDI claim, he was literally at my side thru the entire process and that came through for me. My therapist and sister continued to try and get me to leave the basement, but to no avail. At some point in 1998 or 1999 I put a counter on the website and was shocked to discover how many visitors we were getting. Time goes by my sister gets married and I move from the basement to the upstairs, there is much celebration that Aunt T is living in the light again. More time goes by and I settle into my life in St Louis and spend more time on the site trying new things, finding more information. 2003 I buy my own home VA loan. For years now I have just considered HadIt.com my job and I get up every morning go to the office and work for several hours, take an afternoon break and see where the rest of day takes me. I have a place in the office to use the computer and a comfortable to place to read journals and articles and take notes. Blah, blah, blah so that is my story and HadIt.com's intertwined.
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      Hi I've updated our HadIt.com Pass It On Cards. They are in a PDF format you can print them out cut them there are 12 to a page. If you have found HadIt.com helpful and would like to pass it on to other veterans this is an easy way to do it.I hope you find them helpful, feel free to leave a few anywhere veterans gather, veterans centers, veterans hospitals, public libraries, be creative. Please make sure though, that if you want to leave some at any business you ask permission first.Here you go http://www.hadit.com...it_on_cards.pdf
    • VA Training and Fast Letter Forum Index

      VA Training and Fast Letter Forum Index The following is the index with links to the various Training and Fast Letters plus a few miscellaneous. These letters are not necessarily in the original formatting. I have tried to present them in an easy-to-read form instead of some forms as originally presented. Some of the paragraphs were WAAAAYYY too long. lol - HadIt.com Member fanaticbooks Something to be aware.... Some of these letters may be rescinded, outdated, or otherwise no longer viable. I have still included them because sometimes they provide additional insight or just plain more information than the newest version. Use them wisely. The oldest letters will display at the bottom with the latest letters displayed at the top, all in sequential numbers. Coding of the letters... FL = Fast Letter TL = Training Letter First two numbers = last two digits of year of origin Training Letter http://www.hadit.com/forums/index.php?/topic/40694-va-tl-00-07/ http://www.hadit.com/forums/index.php?/topic/40693-va-tl-00-06/ Fast Letter Number Title http://www.hadit.com/forums/index.php?/topic/44262-va-fl-11-15/ http://www.hadit.com/forums/index.php?/topic/44260-va-fl-11-13/ http://www.hadit.com/forums/index.php?/topic/44261-va-fl-11-11/ http://www.hadit.com/forums/index.php?/topic/44310-va-fl-11-09/ http://www.hadit.com/forums/index.php?/topic/42151-va-fl-11-03/ http://www.hadit.com/forums/index.php?/topic/40957-va-fl-10-49/ http://www.hadit.com/forums/index.php?/topic/40958-va-fl-10-46/ http://www.hadit.com/forums/index.php?/topic/40959-va-fl-10-45/ http://www.hadit.com/forums/index.php?/topic/40960-va-fl-10-42/ http://www.hadit.com/forums/index.php?/topic/40961-va-fl-10-39/ http://www.hadit.com/forums/index.php?/topic/40962-va-fl-10-35/ 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Emg

Question

Posted

I had an EMG today because my feet hurt so much. The VA said there was no nerve damage in my feet or pinched nerves. So I guess I am cured. Can you have peripheral neuropathy and yet not show any damage on an EMG? I have miserable pain in my feet and sometimes lose my balance, but VA now says my nerves are fine. Feelings of numbness,pain and tingling are not totally objective. I worry the VA will decide I do not have diabetic neuropathy and cut off my pain meds. I have been for a lot of tests this last two weeks and my subjective pain is not really reflected in my objective findings from MRI and EMG, but I still have miserable pain in my feet and back. I get sick of doctors telling me that my findings are normal and, yet, I hurt, and the VA does not adequately treat my pain. I don't believe that these pain doctors know what they are doing, and just want big bucks to do procedures like nerve blocks that may or may not work.

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9 answers to this question

Posted

I have some of your symptoms and mine are partially related to my herniated disc's in my back. The compression of the bulging discs press on the nerves and thereby results in numbness, pain, tingling, falls related to not being able to feel the extremity and possibly some footdrop also. Coldness to extremity, color changes (bluish related to poor circulation), edema (swelling) espec. if dependent (hanging down lower, or sitting in chair and feet down on floor), loss of balance, burning sensations, etc

Do you have back trouble? Did yout MRI show any cervical, or lumbar back degeneration?

Nerve block 4 weeks ago and pain worse. Had them in past without any success, hoped for improvement, but notta. What about fibromyalgia also...where else is all your pain? Trigger points with fibro yet many people have probs with feet too. I think sometimes peripheral neuropathy can be evident without examination, testing confirmation, ie(EMG), that is just my opinion. There are some nerves that have neural impulse synaspes that misfire, esp if compression of nerves.

OTC meds don't touch the pain. Hydrocod. or fentanyl patches may help to manage it but not always and not a cure. Then you have to worry about the s/e of meds esp. with the other meds you take...esp watch for antidepressants with pain meds.

I had an EMG today because my feet hurt so much. The VA said there was no nerve damage in my feet or pinched nerves. So I guess I am cured. Can you have peripheral neuropathy and yet not show any damage on an EMG? I have miserable pain in my feet and sometimes lose my balance, but VA now says my nerves are fine. Feelings of numbness,pain and tingling are not totally objective. I worry the VA will decide I do not have diabetic neuropathy and cut off my pain meds. I have been for a lot of tests this last two weeks and my subjective pain is not really reflected in my objective findings from MRI and EMG, but I still have miserable pain in my feet and back. I get sick of doctors telling me that my findings are normal and, yet, I hurt, and the VA does not adequately treat my pain. I don't believe that these pain doctors know what they are doing, and just want big bucks to do procedures like nerve blocks that may or may not work.

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Posted

I can sympathize with you. My feet hurt a lot and they said I have plantar fascitis but I have more pain than just plantar fascitis.

I've had the EMG's too, and I think the nerves can be damaged but not damaged and/or compressed enough to show up on EMG. Unfortunately if it doesn't show up on a test, most doctors say there is nothing there and sometimes seem to take satisfaction from that fact. :rolleyes:

Have you talked to the podiatrist?

Susie

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Posted

I have back pain and I have talked to a podiatrist. I have tried almost everything and still have pain. My foot pain started first and then as I got more immobile my back started to hurt. I have arthritus in my back and some bulging discs. When I first get up in the morning my back is stiff and sore. If I sit too long I get sore in my back and it gets stiff. I am constantly getting up and streching my back and hamstrings. The percoset I take does not give me much relief. My feet are beyond hope. Once the pain cycle gets cranked up it is hard to stop.

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Posted

John,

I would recommend you have them check you for RSD (Reflex sympathetic distrophy); another name for this is CRPS (Complex regional pain syndrome).

My spouse was diagnosed with this condition (RSD) from a botched bunion surgery.

From what her pain specialist tells us, many doctors are not familiar with this condition or don't know how to diagnose it and will say that the "pain is in the patient's head" or something like that.

I wish you the best. :rolleyes:

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Posted

John999, I feel for you and know where you are coming from. I have the lower extremeities neuropathy and severe knee pain due ot osteoarthritis/DJD, but none of my subjective tests are indicative to the pain and weekness I suffer. I do however have a secondary disease process called Sacoidosis, a autoimmune disease similiar to Lupus. It causes constant iritation and swelling in the connective tissue and nerves of just about every joint in my body except my spine. That is another story in itself.

Anyway, they won't come right out and say anything possitive as to what is the source of my extreme pain, but since physical exams show varifiable weekness, they have given me a scooter to use when I have to remain on my feet for any amount of extended time. go figure.

I rate a cart, but they can't say the neuropathy is the cause, or the minor DJD disease is the cause, or the osteoarthritis is the cause, or if the Sacoidosis is the cause, or even if a combination of all of them is the cause. Non of these are SC or have any likelyhood of ever being SC, so why do they still hem and haw around it?

I too am on anti-inflamatoies, one is also for pain and take the Hydrocodone also. I'm suppose to take one tablet of it four times a day, but the pain is so great at night when I try to sleep, I double up and take two before bed time and again mid way through my night, just so I get enough sleep. I also take a sleep med and a psych med at bed time, otherwise I would get very little if any sleep until I drop from extreme exhaustion.

I wish you luck in you endevevors to manage your pain, I know how it is.

Rockhound Rider :rolleyes:

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Posted

John did you have a simple emg or nerve conduction study? Normally an EMG is done to test the reaction of the muscles at rest and then during contraction. You will not see nerve damage such as PN. To truly see PN you have to have a nerve conduction study done.

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Posted

John, and both EMG's and nerve conduction studies are worthless, barbaric medical tests that provide little to no information. If you have any muscle guarding at all, it will greatly skew the results. Muscle guarding will show up as a lack of nerve damage. Show me someone with a orthopedic problem who does not have muscle guarding. I wouldn't worry.

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Posted

I had an EMG today because my feet hurt so much. The VA said there was no nerve damage in my feet or pinched nerves. So I guess I am cured.

John999, I have misspoken. I said I had an EMG. I had a nerve conduction test that proved PN. My symptoms are the same as yours.************** "Can you have peripheral neuropathy and yet not show any damage on an EMG? I have miserable pain in my feet and sometimes lose my balance, but VA now says my nerves are fine. Feelings of numbness,pain and tingling are not totally objective."*************

My pain got worse over time and near the end of my work life the feet were swollen and painful by 9am, with 8 more hours to go. <ahttp://www.hadit.com/forums/uploads/emoticons/default_angry.png' alt=':angry:'> Ricky may have hit the nail on the head. "John did you have a simple emg or nerve conduction study? ". I also have bad disc shown by an MRI. I turned that in to VA as I knew they would get it anyway from SSD. I understand that pain of PN goes down the front of the leg and disc the back of the leg. I have some of both (lucky me).Point is all my success with doctors stems from that one nerve conduction test. I gave copies to ever doctor I saw, they all put it in their notes. <ahttp://www.hadit.com/forums/uploads/emoticons/default_rolleyes.gif' alt=':rolleyes:'> I have a good tolerance for pain. Had a burst appendix that was not found for 10 days. People are different. 98.6 is a rule of thumb. You might run 97 or 99 and be normal. I am sorry for your pain. The reason I had the MRI is because the doctors did not seem to think that PN should be so bad. I had hope that it was something that could be fixed!I think I would go to the best nerve doctor in Tampa and get an IMO nerve test. Hard for them to argue with FACTS. Surround & Overwhelm. Do you think Overwhelm comes from the German? <_<

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Posted

Has anyone mentioned multiple sclerosis? My MS symptoms started with only my left hand numbness with pain. Now Almost my entire body has some degree of numbness with on and off pain. I had a EMG when only my hand was numb and the EMG was negative. A nuerologist that deals with MS would believe you when it comes to pain.

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