Jump to content



Search



Shoutbox Open the Shoutbox in a popup
@  vet201060 : (22 August 2014 - 10:29 AM) Thanks For The Info
@  carlie : (22 August 2014 - 10:03 AM) Vet201060 - No The Vso Does Not Represent The Va. Also - Best To Post Questions To The Board.
@  vet201060 : (22 August 2014 - 09:58 AM) I Have An Appt With A County Vso. Do They Represent The Va At All? Do I Need To Treat It Like Going To A C&p Or Like No Worries And They Are There To Help? Please Respond Asap, Appt In 1 Hr. I Am Worried Now
@  babyray : (21 August 2014 - 07:15 AM) Dc
@  rootbeer22 : (20 August 2014 - 02:19 PM) Buddy Statements
@  IraqVet : (19 August 2014 - 07:02 PM) Anyone Recieveing Letters From Vfw To Applay For Tricare And Campava Supplimantal Insurance When You Do Not Have 100% Yet....mines Pending But I Wonder If They Know Something I Dont
@  Detonator : (19 August 2014 - 10:51 AM) Insomnia
@  jbasser : (18 August 2014 - 08:29 PM) Folks, Dont Miss The Hadit Radio Show Wed At 1Pm Eastern. The Basser Hour.
@  Thadine : (18 August 2014 - 12:23 PM) Nod
@  carlie : (18 August 2014 - 08:37 AM) Notapb1 - Might Get More Replies If You Post The Questions Into The Forums.
@  notapb1 : (18 August 2014 - 07:26 AM) Looking For Feedback. I Have Applied For Iu. Was Told To Come In For A Psych Eval And Diabetes Clinic. Received A Call From Va They Were Cancelling The Psych Eval As The Doc(?) Who Did It In March(Ptsd Increase) Was Asked For His Opinion And He Was Going To Submit That. This Is The Same Individual Who Told Me Off The Record About Iu And To Contact My Service Officer. Sounds Positive To Me, But I May Be A Little Bias. Thoughts?
@  waltbarb : (16 August 2014 - 08:35 PM) Appeal
@  MarkInTexas : (16 August 2014 - 04:49 PM) Just Testing This "shout" Thing....... Have A Great Weekend Everybody!
@  Notorious Kelly : (16 August 2014 - 04:40 PM) I Reset Firefox And Now Can Read- Probably Kok Issue (Kitties On The Keyboard)
@  Notorious Kelly : (16 August 2014 - 04:25 PM) I Couldn't Read Posts So I Changed Theme To Ipboard Mobile. Now I Can Read And It Says Hadit Custom
@  carlie : (16 August 2014 - 03:32 PM) Raymondb50 - Probably Better To Post Your Question To The Board.
@  carlie : (16 August 2014 - 03:15 PM) Raymondbb50 - What Is It That You Want ?
@  raymondb50 : (15 August 2014 - 09:47 PM) How Do I Change Member Title And Group Info In My Profile?
@  carlie : (15 August 2014 - 08:37 PM) Just Saying Hi To All
@  WoundedWarrior : (14 August 2014 - 08:50 AM) Got Unofficial Word From The Vso - Unofficially Approved For Tdiu, Effective Date 6/3/2014

Photo

Is It Als?


This topic has been archived. This means that you cannot reply to this topic.
6 replies to this topic

#1 gyrene

 
gyrene

    E-2 Recruit

  • Seaman
  • Pip
  • 3 posts
 

Posted 09 June 2009 - 09:02 PM

On June 19th I go in for an EMG.This is with my neuorologist at Duke.I think I will get a dx of ALS as we have already excluded M.S.,Chronic Inflamatory Demylinating Polyneuropathy,Multifocal Motor Axonopathy and its not Progressive Bulbar or Primary Lateral Sclerosis.He says he does not know what I have but its in the spinal muscular atrophy family.He mentioned Progressive Muscular Atrophy.I have lower motor neuron symptoms like fasciculations in both foreams and legs and across the belly,muscle cramps in both hands,atrophy of the left forearm and hand and now have fasciculations in the eyelids and throat.I have stumbled across totally level floors like at Target or J.C.Penney or even in my own home.On numerous occasions I just fall into tears for no real good reason.The muscles in the area around my neck are tight and I have a "real" pain in the neck on the left side.I have lost muscle mass in my chest area.Some of the muscle cramps have seemed like the jaws of life being used on me.There is more too but I think you all get the idea.
So it seems to me I have both upper motor neuron and lower motor neuron symptoms.
And therefore I think the dx will be ALS.
Now the question is this.Do I need to get the PVA.org involved on my behalf so I can get into the V.A.system?Do I need a VSO?How do I get one?
If my doc at Duke says its ALS will I see a VA doc so he can confirm it?Isn't the dx from Duke enough to trigger a VA rating?
How much testing will they ask me to undergo only to prove to them that the Duke doc is correct?
How far along does a guy have to be before he gets a 100% rating?
I just found this board today and want to thank who ever it is that put it together and keeps it going.Its beyond me to know how this gets done but I sure do appreciate it.
Thank you

Edited by gyrene, 10 June 2009 - 07:36 AM.


Advertise Here

 

#2 Pete53

 
Pete53

    Moderator/HadIt.com Elder

  • Moderator
  • PipPipPipPipPipPipPipPipPipPip
  • 21795 posts
 

Posted 10 June 2009 - 05:00 AM

Welcome to Hadit

#3 boblandstar

 
boblandstar

    E-3 Seaman

  • Seaman
  • PipPipPip
  • 14 posts
 

Posted 11 June 2009 - 10:46 AM

The onset of ALS may be so subtle that the symptoms are frequently overlooked. The earliest symptoms are obvious weakness and/or muscle atrophy. This is followed by twitching, cramping, or stiffness of affected muscles; muscle weakness affecting an arm or a leg; and/or slurred and nasal speech. The twitching, cramping, etc. associated with ALS is a result of the dying muscle, therefore these symptoms without clinical weakness or atrophy of affected muscle is likely not ALS.

The parts of the body affected by early symptoms of ALS depend on which motor neurons in the body are damaged first. About 75% of people experience "limb onset" ALS. In some of these cases, symptoms initially affect one of the legs, and patients experience awkwardness when walking or running or they notice that they are tripping or stumbling more often. Other limb onset patients first see the effects of the disease on a hand or arm as they experience difficulty with simple tasks requiring manual dexterity such as buttoning a shirt, writing, or turning a key in a lock. Occasionally the symptoms remain confined to one limb; this is known as monomelic amyotrophy.

About 25% of cases are "bulbar onset" ALS. These patients first notice difficulty speaking clearly. Speech becomes garbled and slurred. Nasality and loss of volume are frequently the first symptoms. Difficulty swallowing, and loss of tongue mobility follow. Eventually total loss of speech and the inability to protect the airway when swallowing are experienced.

Regardless of the part of the body first affected by the disease, muscle weakness and atrophy spread to other parts of the body as the disease progresses. Patients experience increasing difficulty moving, swallowing (dysphagia), and speaking or forming words (dysarthria). Symptoms of upper motor neuron involvement include tight and stiff muscles (spasticity) and exaggerated reflexes (hyperreflexia) including an overactive gag reflex. An abnormal reflex commonly called Babinski's sign (the large toe extends upward as the sole of the foot is stimulated) also indicates upper motor neuron damage. Symptoms of lower motor neuron degeneration include muscle weakness and atrophy, muscle cramps, and fleeting twitches of muscles that can be seen under the skin (fasciculations). Around 1545% of patients experience pseudobulbar affect, also known as "emotional incontinence", which consists of uncontrollable laughter, crying or smiling, attributable to degeneration of bulbar upper motor neurons resulting in exaggeration of motor expressions of emotion.

#4 gyrene

 
gyrene

    E-2 Recruit

  • Seaman
  • Pip
  • 3 posts
 

Posted 18 June 2009 - 02:44 PM

Well I'm going in tomorrow for that EMG and after doing almost nothing but research and reading the same 955,000 documents that google kindly ground out for me I guess I know as much as I can on the topic.
Will I go home with a diagnosis?
Don't know.
Will it be ALS?
Don't know but almost everything else has been excluded already and the Dr.wants to be there for the EMG so I'm thinking he is thinking it'll be ALS because he is out of aces if you know what I mean.
With the current backlog of almost 1,000,000 claims at the V.A.nationwide how will I do at the VAMC in Durham N.C.?
Don't know.But I'll let you know how it goes.BTW does anyone know which VSO I should use? or which one to avoid?
Won't get to the VAMC till Monday at the earliest.

#5 spacemav

 
spacemav

    E-3 Seaman

  • Seaman
  • PipPipPip
  • 6 posts
 

Posted 19 June 2009 - 11:53 PM

Not sure what happened yesterday at Duke, but just wanted you to know someone was thinking about you. Hope everything went well. God Bless

#6 Beth57

 
Beth57

    E-2 Recruit

  • Seaman
  • Pip
  • 1 posts
 

Posted 27 October 2009 - 04:55 PM

Well I'm going in tomorrow for that EMG and after doing almost nothing but research and reading the same 955,000 documents that google kindly ground out for me I guess I know as much as I can on the topic.
Will I go home with a diagnosis?
Don't know.
Will it be ALS?
Don't know but almost everything else has been excluded already and the Dr.wants to be there for the EMG so I'm thinking he is thinking it'll be ALS because he is out of aces if you know what I mean.
With the current backlog of almost 1,000,000 claims at the V.A.nationwide how will I do at the VAMC in Durham N.C.?
Don't know.But I'll let you know how it goes.BTW does anyone know which VSO I should use? or which one to avoid?
Won't get to the VAMC till Monday at the earliest.



I wish I could figure this site out...it seems so complex....

I just want to ask a question of anyone out there who knows....

My husband was a Navy Vet and died of ALS almost 12 years ago. I have applied for DIC and meet all the requirements except that I can't seem to get a straight answer about 'boots on the ground'. He was a Viet N
am Era Veteran but was on a ship...can't prove boots on the ground myself. Is that a requirement with a confirmed ALS DX written on his death certificate?

#7 retiredat44

 
retiredat44

    E-8 Senior Chief Petty Officer

  • Senior Chief Petty Officer
  • PipPipPipPipPipPipPipPip
  • 782 posts
 

Posted 15 July 2010 - 01:04 PM

I have been suffering a very long time with tremors, and involuntary movements.. I finally got a diagnosis of Myotonic Dystrophy (like Muscular Dystrophy) a couple of years ago. I just went for a C&P exam and the neurologist docto was eamining me..

I wasn't real happy with the Myotonic Dystrophy diagnosis (I was happy to get a decent diagnosis.. don't get me wrong..) but, also I have a lot of symptoms that seem to be consistant with other diseases like MS and Amyotrophic lateral sclerosis. I would like to know if anyone else has any of these disease here in these forums.. I would like ot compare the sysmptoms..

thanx..

Edited by retiredat44, 15 July 2010 - 01:09 PM.





Advertise Here