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    • A bit about Tbird and HadIt.com for those who've asked...

      The following is on my About page, but some have been asking how this all happened. So here is my little story. Tbird US Navy 1983 – 1990 E-6 HadIt.com the website domain registered Jan 20, 1997 the domain is registered and paid for through Jan 21, 2023 at which time I plan to register it for another 15 years Lord willing and the creek don't rise. I guess the best place to start is Jan 1991; I had gotten out of the navy Dec 1990. At my separation seminar, there was a DAV rep Jim Milton he told us to bring our medical records in and he would look through them for us and let us know if we should file a claim with the VA. Well, bless his heart, he opened my medical file, reads the first insert, looks me straight in the eye, and says you will be 50% for the rest of your life and he would file the claim for me. 50% was for surgery I had in the service. True to his word he met with me and talked with me for a long time filled out my paper work and urged me to file for PTSD. I would not file the PTSD claim, nor even discuss it. By Feb 1991 I had moved to the San Francisco bay area and was staying at a friends apartment and pretty much I was just a puddle. In desperation one night I called suicide hot line, I had no job, no idea about going to the VA. They talked with me for a long time and explained to me that I could go to the local VA hospital even if I did not have insurance. Now, I know what you are thinking if I was 50% why didn't I just go to the VA in the first place, two reasons 1, this was Feb 1991 and the 50% didn't come till May and 2, even if it had come through it is unlikely that I would have had the mental acuity at the time to put the two together. I relate this here because it is where so many of our brothers and sisters are coming from, perhaps where you started. Fuzzy and unsure, in pain and sometimes homeless they come to the VA hospital for help. And that is where I ended up. Up to the pysch ward I went, blah, blah, blah, a few days later I was released with a promise of a call from the out patient program, which I would soon be entering. Blah, blah, blah, after many missed communications, and no call backs I was at the Day Hospital everyday M-F. And this brothers and sisters is where I began to learn and formulate my plan for HadIt.com. Veterans, veterans everywhere…I spent a year in the day hospital and about another year at a sheltered workshop before I got back on my feet. So I just talked to veterans everyday waiting for appointments, waiting for prescriptions, waiting for a vet rep and I started to learn the system. While in the navy I was data analyst and had to learn a 5 volume manual and just about anything you were suppose to do was in that manual. So I figured there must be a manual on how to do a VA claim or at the very least regulations. So I found out about the Code of Federal Regulations, United States Code, Veterans Affairs Manuals and so on and so forth. Of course this was 1991/1992 I was living in a tiny studio apartment in a particularly bad neighborhood, working in a sheltered workshop making a nickel per envelope I stuffed throw in PTSD and you will see that it was a difficult task for me to get somewhere where they had copies of these, let alone that they would let me look at. And there was so much knowledge around me, it was like the gold rush in those days, I could just sit on a bench a veteran would sit down next to me a little conversation later I had another nugget, I made copious notes. Phone numbers to call, ask for this guy or that guy he'll give you the straight scoop and they'd slip me a piece of paper with a number on it. You want to read this regulation or that one and another slip of paper into my hand. I spent a lot of time on those benches watching the squirrels they gathered their nuts and I gathered mine :) So I'm thinking I could put a little handbook together print it out and hand it out at the VA. Or perhaps fliers. Still formulating, time goes by, 1994/1995 I am being treated for PTSD regularly and doing and feeling much better and I go to work for a company as a marketing systems analyst and I discover the internet. Well let me tell you that was perhaps one of the most significant life changing events I have ever experienced. And I might add finally a positive one :) It seemed only natural to me that surely there must be a website that contained all the knowledge I wanted, well as it turned out not so much, lots of stuff but I wanted to get straight to the claims information and there was a lot of stuff to wade through to get to it. So taking my lesson from the squirrels earlier I started to gather, gather, gather…and learn HTML and work as a marketing systems analyst and work my claim. 1996/1997 major PTSD cork blows and unemployed. Working my claim, working the website. 20 Jan 1997 register HadIt.com domain name right after getting off the phone with the VA and saying I've had it with this. As fate would have it the old DAV board goes down just as mine opens up and folks start to wander in. So HadIt.com has two main components the website which supports the discussion board with links, articles, research resources etc. The website starts to grow, I can't tell you how many times I had to switch servers for space and features. I continue on a downward trend and in 1998 ended up back home in St Louis living in my sisters basement in therapy and working it, I swear I would have swung a dead chicken around my head at midnight naked if I thought it would have helped. The website continued to do great during this time, I just stayed in the basement bought new software, new books, and learned how to make things work and I continued to use this knowledge to make HadIt.com better. My 100% finally came through from the VA and I had a friend who is an advocate who helped me thru my SSDI claim, he was literally at my side thru the entire process and that came through for me. My therapist and sister continued to try and get me to leave the basement, but to no avail. At some point in 1998 or 1999 I put a counter on the website and was shocked to discover how many visitors we were getting. Time goes by my sister gets married and I move from the basement to the upstairs, there is much celebration that Aunt T is living in the light again. More time goes by and I settle into my life in St Louis and spend more time on the site trying new things, finding more information. 2003 I buy my own home VA loan. For years now I have just considered HadIt.com my job and I get up every morning go to the office and work for several hours, take an afternoon break and see where the rest of day takes me. I have a place in the office to use the computer and a comfortable to place to read journals and articles and take notes. Blah, blah, blah so that is my story and HadIt.com's intertwined.
    • HadIt.com Pass It On Cards

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    • VA Training and Fast Letter Forum Index

      VA Training and Fast Letter Forum Index The following is the index with links to the various Training and Fast Letters plus a few miscellaneous. These letters are not necessarily in the original formatting. I have tried to present them in an easy-to-read form instead of some forms as originally presented. Some of the paragraphs were WAAAAYYY too long. lol - HadIt.com Member fanaticbooks Something to be aware.... Some of these letters may be rescinded, outdated, or otherwise no longer viable. I have still included them because sometimes they provide additional insight or just plain more information than the newest version. Use them wisely. The oldest letters will display at the bottom with the latest letters displayed at the top, all in sequential numbers. Coding of the letters... FL = Fast Letter TL = Training Letter First two numbers = last two digits of year of origin Training Letter http://www.hadit.com/forums/index.php?/topic/40694-va-tl-00-07/ http://www.hadit.com/forums/index.php?/topic/40693-va-tl-00-06/ Fast Letter Number Title http://www.hadit.com/forums/index.php?/topic/44262-va-fl-11-15/ http://www.hadit.com/forums/index.php?/topic/44260-va-fl-11-13/ http://www.hadit.com/forums/index.php?/topic/44261-va-fl-11-11/ http://www.hadit.com/forums/index.php?/topic/44310-va-fl-11-09/ http://www.hadit.com/forums/index.php?/topic/42151-va-fl-11-03/ http://www.hadit.com/forums/index.php?/topic/40957-va-fl-10-49/ http://www.hadit.com/forums/index.php?/topic/40958-va-fl-10-46/ http://www.hadit.com/forums/index.php?/topic/40959-va-fl-10-45/ http://www.hadit.com/forums/index.php?/topic/40960-va-fl-10-42/ http://www.hadit.com/forums/index.php?/topic/40961-va-fl-10-39/ http://www.hadit.com/forums/index.php?/topic/40962-va-fl-10-35/ 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Desert Storm "baby" Syndrome?

14 posts in this topic

Posted · Report post

I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?

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Posted · Report post

hi,let me start by saying im so sorry to hear about your husband and also your son.

i am also a desert storm veteran. who suffers from gws(gulf war syndrome)

my 11 yr old son has had pain in his legs since hes been little. hes been on naproxen for yrs.

they said the same thing it was growing pains.

hes been to every specialist also with no diagnosis??

he hasnt thank god lost his legs like your son.

he also suffers from extreme and frequent unexplained headaches ???

i wish the us govt would finally own up to what they did to us . so we can get treated for our ilness.

ill keep you and your family in our prayers.

tankerjoe0

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I'm also a GW1 veteran with GWI symptoms.

There are allot of poeple that feel GW veterans children are having allot of health problems. However, it has just been a bit over a year since Gulf War Illness has been declared an official illness among veterans and it is still not recognised by the VA. At this stage, the powers to be are still denying that GW veterans family members are having any more health problems than the rest of the population.

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I wonder what sorts of problems the OIF/IEF vets will have due to some environmental issue? It takes the VA years to actually make these diseases presumptive. Look at Agent Orange. They are still adding diseases 40 years later to the list. The only thing the VA admits regarding children of AO vets is spinabiffida(spelling?) The disease has to hit all the lights on the IOM pinball machine.

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Dottiek, I am sure you will be able to find help here for some of your difficulities experienced by you and your son. I am glad you joined this site. People here look out for one another, and if they don't know an answer, they will try and seek it all over.

Hope is offerred here too. Your husband serving during Desert Storm is something you and your family can be proud of, and we salute his service and you loss.

May you find assistance on your journey, answers to some questions, and people who appreciate vets and their families. :( halos2

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Heck, Viet Nam ended when ? ?

Just recently three more presumptive conditions

were just added on.

carlie

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I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?

Where, in the U.S., are you located? And, there is a reason why I ask.

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Posted · Report post

Dottiek, I am sure you will be able to find help here for some of your difficulities experienced by you and your son. I am glad you joined this site. People here look out for one another, and if they don't know an answer, they will try and seek it all over.

Hope is offerred here too. Your husband serving during Desert Storm is something you and your family can be proud of, and we salute his service and you loss.

May you find assistance on your journey, answers to some questions, and people who appreciate vets and their families. :rolleyes: halos2

Dottie,

This is a web site I found some time ago. The people here conduct research that might be of help.

Good luck,

Bergie

http://www.umrc.net/

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Gulf War Baby Registry (ABDC)

930 Woodcock Rd.,

Suite 225 Orlando, FL 32803

1-800-313-2232 1-407-245-7035

This would be a good place to start.

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I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?

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My son was born with mutiple birth defects and I was told it has nothing to do with desert storm. He had three holes in his heart ,cleft pallet,low blood sugar,hernias,poor eye sight,bad hearing,low muscle tone,the whole top of his head was a soft spot,slight developemental delays,he has needed growth hormone shots numerous times. He didnt walk until he was like 2 years old. he cant run normal because he isnt flexible enough in his hips. He has fluid on his brain but not causing pressure. I dont think I have left anything out! I had a geneticist tell me that I contribute so little that desert storm shouldn't affect my kids. I really would like to know why these things happened. Let me know if anyone would like to talk about this.

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Welcome to Hadit douggle

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This sounds similar to agent orange and Vietnam Veterans' children being born with birth defects. VA only offered special benefits if the AO veteran was female and served in theater prior to giving birth to the children. Male vets who came back and fathered children received no special benefits.

I'm no expert on this, so I could be wrong. I just remember reading about this a while back. Not sure if there is any connection to these cases.

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I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?

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