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Desert Storm "baby" Syndrome?


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#1 dottiek

 
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Posted 03 December 2009 - 02:30 PM

I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?

#2 TANKERJOE0

 
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Posted 09 December 2009 - 06:10 PM

hi,let me start by saying im so sorry to hear about your husband and also your son.
i am also a desert storm veteran. who suffers from gws(gulf war syndrome)
my 11 yr old son has had pain in his legs since hes been little. hes been on naproxen for yrs.
they said the same thing it was growing pains.
hes been to every specialist also with no diagnosis??
he hasnt thank god lost his legs like your son.
he also suffers from extreme and frequent unexplained headaches ???
i wish the us govt would finally own up to what they did to us . so we can get treated for our ilness.
ill keep you and your family in our prayers.
tankerjoe0

#3 timetowinarace

 
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Posted 09 December 2009 - 06:28 PM

I'm also a GW1 veteran with GWI symptoms.

There are allot of poeple that feel GW veterans children are having allot of health problems. However, it has just been a bit over a year since Gulf War Illness has been declared an official illness among veterans and it is still not recognised by the VA. At this stage, the powers to be are still denying that GW veterans family members are having any more health problems than the rest of the population.

#4 john999

 
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Posted 09 December 2009 - 07:10 PM

I wonder what sorts of problems the OIF/IEF vets will have due to some environmental issue? It takes the VA years to actually make these diseases presumptive. Look at Agent Orange. They are still adding diseases 40 years later to the list. The only thing the VA admits regarding children of AO vets is spinabiffida(spelling?) The disease has to hit all the lights on the IOM pinball machine.

#5 halos2

 
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Posted 09 December 2009 - 08:16 PM

Dottiek, I am sure you will be able to find help here for some of your difficulities experienced by you and your son. I am glad you joined this site. People here look out for one another, and if they don't know an answer, they will try and seek it all over.
Hope is offerred here too. Your husband serving during Desert Storm is something you and your family can be proud of, and we salute his service and you loss.
May you find assistance on your journey, answers to some questions, and people who appreciate vets and their families. :( halos2

#6 carlie

 
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Posted 09 December 2009 - 08:24 PM

Heck, Viet Nam ended when ? ?
Just recently three more presumptive conditions
were just added on.
carlie

#7 LarryJ

 
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Posted 09 December 2009 - 08:52 PM

I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?



Where, in the U.S., are you located? And, there is a reason why I ask.

#8 *Bergie*

 
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Posted 14 December 2009 - 09:14 PM

Dottiek, I am sure you will be able to find help here for some of your difficulities experienced by you and your son. I am glad you joined this site. People here look out for one another, and if they don't know an answer, they will try and seek it all over.
Hope is offerred here too. Your husband serving during Desert Storm is something you and your family can be proud of, and we salute his service and you loss.
May you find assistance on your journey, answers to some questions, and people who appreciate vets and their families. :rolleyes: halos2


Dottie,
This is a web site I found some time ago. The people here conduct research that might be of help.

Good luck,
Bergie
http://www.umrc.net/

#9 sharon

 
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Posted 14 December 2009 - 09:52 PM

Gulf War Baby Registry (ABDC)
930 Woodcock Rd.,
Suite 225 Orlando, FL 32803
1-800-313-2232 1-407-245-7035

This would be a good place to start.


#10 douggle

 
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Posted 13 July 2010 - 05:00 PM

I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?



#11 douggle

 
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Posted 13 July 2010 - 05:15 PM

My son was born with mutiple birth defects and I was told it has nothing to do with desert storm. He had three holes in his heart ,cleft pallet,low blood sugar,hernias,poor eye sight,bad hearing,low muscle tone,the whole top of his head was a soft spot,slight developemental delays,he has needed growth hormone shots numerous times. He didnt walk until he was like 2 years old. he cant run normal because he isnt flexible enough in his hips. He has fluid on his brain but not causing pressure. I dont think I have left anything out! I had a geneticist tell me that I contribute so little that desert storm shouldn't affect my kids. I really would like to know why these things happened. Let me know if anyone would like to talk about this.

#12 Pete53

 
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Posted 14 July 2010 - 08:13 AM

Welcome to Hadit douggle

#13 Vync

 
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Posted 14 July 2010 - 08:46 AM

This sounds similar to agent orange and Vietnam Veterans' children being born with birth defects. VA only offered special benefits if the AO veteran was female and served in theater prior to giving birth to the children. Male vets who came back and fathered children received no special benefits.

I'm no expert on this, so I could be wrong. I just remember reading about this a while back. Not sure if there is any connection to these cases.

Edited by Vync, 14 July 2010 - 08:49 AM.


#14 shawnita

 
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Posted 31 May 2011 - 08:10 PM

I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?