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    • How to get your questions answered.

      How to get your questions answered. A few observations, and requests of all members. All folks who come here are volunteers who do this on their own time and their own dime.To avoid burning out our best contributors please follow these guidelinesf you are reading a post and it reminds you of a question you want to ask, start a new topic, if you place your question in someone thread it will be difficult to distinguish your question from the original poster, you will get better results posting a new topic with your question. 1. Before Posting please do a search and see if your question has already been answered. If you find the answer print it out and put it in a file to use as a reference file, I find this helpful myself. 2. If you can not find the answer and you do post a question, please print out those answers and refer to them to avoid duplicate questions. 3. Refer to the Frequently Asked Questions4. Duplicate questions will come up from time to time but the keeping them to the minimum will lighten the load on the regular volunteers.5. Respect folks privacy do not request their personal phone numbers for claims help, it is inappropriate and not why they are here.6. Keep the topics focused on veterans issues, in closing Search first Search ... Ask second.it may save a lot of time or at the very least enlighten you.
    • Listen Live Every Wed 5:30 PM CST to SVR Radio, Veterans Issues are discussed with various guests.

      Listen Live Every Wed 5:30 PM CST to SVR Radio, Veterans Issues are discussed with various guests. Please check the little home I am carving out for our SVR partners. http://www.hadit.com/svr.html
    • A bit about Tbird and HadIt.com for those who've asked...

      The following is on my About page, but some have been asking how this all happened. So here is my little story. Tbird US Navy 1983 – 1990 E-6 HadIt.com the website domain registered Jan 20, 1997 the domain is registered and paid for through Jan 21, 2023 at which time I plan to register it for another 15 years Lord willing and the creek don't rise. I guess the best place to start is Jan 1991; I had gotten out of the navy Dec 1990. At my separation seminar, there was a DAV rep Jim Milton he told us to bring our medical records in and he would look through them for us and let us know if we should file a claim with the VA. Well, bless his heart, he opened my medical file, reads the first insert, looks me straight in the eye, and says you will be 50% for the rest of your life and he would file the claim for me. 50% was for surgery I had in the service. True to his word he met with me and talked with me for a long time filled out my paper work and urged me to file for PTSD. I would not file the PTSD claim, nor even discuss it. By Feb 1991 I had moved to the San Francisco bay area and was staying at a friends apartment and pretty much I was just a puddle. In desperation one night I called suicide hot line, I had no job, no idea about going to the VA. They talked with me for a long time and explained to me that I could go to the local VA hospital even if I did not have insurance. Now, I know what you are thinking if I was 50% why didn't I just go to the VA in the first place, two reasons 1, this was Feb 1991 and the 50% didn't come till May and 2, even if it had come through it is unlikely that I would have had the mental acuity at the time to put the two together. I relate this here because it is where so many of our brothers and sisters are coming from, perhaps where you started. Fuzzy and unsure, in pain and sometimes homeless they come to the VA hospital for help. And that is where I ended up. Up to the pysch ward I went, blah, blah, blah, a few days later I was released with a promise of a call from the out patient program, which I would soon be entering. Blah, blah, blah, after many missed communications, and no call backs I was at the Day Hospital everyday M-F. And this brothers and sisters is where I began to learn and formulate my plan for HadIt.com. Veterans, veterans everywhere…I spent a year in the day hospital and about another year at a sheltered workshop before I got back on my feet. So I just talked to veterans everyday waiting for appointments, waiting for prescriptions, waiting for a vet rep and I started to learn the system. While in the navy I was data analyst and had to learn a 5 volume manual and just about anything you were suppose to do was in that manual. So I figured there must be a manual on how to do a VA claim or at the very least regulations. So I found out about the Code of Federal Regulations, United States Code, Veterans Affairs Manuals and so on and so forth. Of course this was 1991/1992 I was living in a tiny studio apartment in a particularly bad neighborhood, working in a sheltered workshop making a nickel per envelope I stuffed throw in PTSD and you will see that it was a difficult task for me to get somewhere where they had copies of these, let alone that they would let me look at. And there was so much knowledge around me, it was like the gold rush in those days, I could just sit on a bench a veteran would sit down next to me a little conversation later I had another nugget, I made copious notes. Phone numbers to call, ask for this guy or that guy he'll give you the straight scoop and they'd slip me a piece of paper with a number on it. You want to read this regulation or that one and another slip of paper into my hand. I spent a lot of time on those benches watching the squirrels they gathered their nuts and I gathered mine :) So I'm thinking I could put a little handbook together print it out and hand it out at the VA. Or perhaps fliers. Still formulating, time goes by, 1994/1995 I am being treated for PTSD regularly and doing and feeling much better and I go to work for a company as a marketing systems analyst and I discover the internet. Well let me tell you that was perhaps one of the most significant life changing events I have ever experienced. And I might add finally a positive one :) It seemed only natural to me that surely there must be a website that contained all the knowledge I wanted, well as it turned out not so much, lots of stuff but I wanted to get straight to the claims information and there was a lot of stuff to wade through to get to it. So taking my lesson from the squirrels earlier I started to gather, gather, gather…and learn HTML and work as a marketing systems analyst and work my claim. 1996/1997 major PTSD cork blows and unemployed. Working my claim, working the website. 20 Jan 1997 register HadIt.com domain name right after getting off the phone with the VA and saying I've had it with this. As fate would have it the old DAV board goes down just as mine opens up and folks start to wander in. So HadIt.com has two main components the website which supports the discussion board with links, articles, research resources etc. The website starts to grow, I can't tell you how many times I had to switch servers for space and features. I continue on a downward trend and in 1998 ended up back home in St Louis living in my sisters basement in therapy and working it, I swear I would have swung a dead chicken around my head at midnight naked if I thought it would have helped. The website continued to do great during this time, I just stayed in the basement bought new software, new books, and learned how to make things work and I continued to use this knowledge to make HadIt.com better. My 100% finally came through from the VA and I had a friend who is an advocate who helped me thru my SSDI claim, he was literally at my side thru the entire process and that came through for me. My therapist and sister continued to try and get me to leave the basement, but to no avail. At some point in 1998 or 1999 I put a counter on the website and was shocked to discover how many visitors we were getting. Time goes by my sister gets married and I move from the basement to the upstairs, there is much celebration that Aunt T is living in the light again. More time goes by and I settle into my life in St Louis and spend more time on the site trying new things, finding more information. 2003 I buy my own home VA loan. For years now I have just considered HadIt.com my job and I get up every morning go to the office and work for several hours, take an afternoon break and see where the rest of day takes me. I have a place in the office to use the computer and a comfortable to place to read journals and articles and take notes. Blah, blah, blah so that is my story and HadIt.com's intertwined.
    • HadIt.com Pass It On Cards

      Hi I've updated our HadIt.com Pass It On Cards. They are in a PDF format you can print them out cut them there are 12 to a page. If you have found HadIt.com helpful and would like to pass it on to other veterans this is an easy way to do it.I hope you find them helpful, feel free to leave a few anywhere veterans gather, veterans centers, veterans hospitals, public libraries, be creative. Please make sure though, that if you want to leave some at any business you ask permission first.Here you go http://www.hadit.com...it_on_cards.pdf
    • VA Training and Fast Letter Forum Index

      VA Training and Fast Letter Forum Index The following is the index with links to the various Training and Fast Letters plus a few miscellaneous. These letters are not necessarily in the original formatting. I have tried to present them in an easy-to-read form instead of some forms as originally presented. Some of the paragraphs were WAAAAYYY too long. lol - HadIt.com Member fanaticbooks Something to be aware.... Some of these letters may be rescinded, outdated, or otherwise no longer viable. I have still included them because sometimes they provide additional insight or just plain more information than the newest version. Use them wisely. The oldest letters will display at the bottom with the latest letters displayed at the top, all in sequential numbers. Coding of the letters... FL = Fast Letter TL = Training Letter First two numbers = last two digits of year of origin Training Letter http://www.hadit.com/forums/index.php?/topic/40694-va-tl-00-07/ http://www.hadit.com/forums/index.php?/topic/40693-va-tl-00-06/ Fast Letter Number Title http://www.hadit.com/forums/index.php?/topic/44262-va-fl-11-15/ http://www.hadit.com/forums/index.php?/topic/44260-va-fl-11-13/ http://www.hadit.com/forums/index.php?/topic/44261-va-fl-11-11/ http://www.hadit.com/forums/index.php?/topic/44310-va-fl-11-09/ http://www.hadit.com/forums/index.php?/topic/42151-va-fl-11-03/ http://www.hadit.com/forums/index.php?/topic/40957-va-fl-10-49/ http://www.hadit.com/forums/index.php?/topic/40958-va-fl-10-46/ http://www.hadit.com/forums/index.php?/topic/40959-va-fl-10-45/ http://www.hadit.com/forums/index.php?/topic/40960-va-fl-10-42/ http://www.hadit.com/forums/index.php?/topic/40961-va-fl-10-39/ http://www.hadit.com/forums/index.php?/topic/40962-va-fl-10-35/ 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  • 0

Parkinsons Disease

Question

10 answers to this question

Posted · Report post

That is one of the chemicals that made me sick on duty which I had to work with long after the doctors removed me from working with petroleum chmicals.. after being taken out of one job and getting very sick... I was forced to work witht his chemical and got very sick again...

it's al in my SMR's and active duty records... that is why I am fighting the denials with appeals.. I suffer from not only pancreas disease, but many neurological disorders and take meds for those diseases too..

They gasoline and jet fuels made me very sick over a long period of time, then the Trico made me sick.. we used it to clean printing presses... and rollers..

I wa sick for 2 years on active duty..

it causes swellling, rashes, headaches, and neurological problems..

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Posted · Report post

All I know is that I did not shake before Vietnam, but did afterward. Filed a claim in 1973-74 with the American Legion. Denied, as I would not go to a doctor with this as it was seen as a personal weakness. AL told me to go home, and live my life. Nothing about exams, appeals, etc., and I was just too young and stupid back then. I just wish we had Hadit back then, and computers.

Papa

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Posted · Report post

The American Parkinsons Assoc and the VA Have joint clinics , I believe 6 of them just for Parkinsons. I do know one of them is in Houston TX , This is not a widly known fact in the VA system and some Va dr's wont share this info.

You can look up the american parkinson's assoc . or ask Debakey va hosp in houston for info on the clinics. They do pay travel pay to these clinics.

Finding and going to the one in houston has been rather helpfull.

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Considering the statistics, the VA needs to make PD a presumptive condition, whether one served in Vietnam or the Gulf like ALS is.

http://www.ehow.com/facts_6371426_veterans-benefits-parkinson_s-disease.html#ixzz1kQiaptCu

Parkinson's disease (PD) is one of the most common neurologic disorders. It affects roughly 1.5 million Americans. The Veterans Health Administration treats an estimated 40,000 veterans with PD each year.

There are over 22, 700,000 million of the US population are veterans and over 40,000 have or have been treated for PD or .5% of the veteran population and there is over 312,884,000 million in the entire US population and 1.5 million have PD or .2 %.

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Posted · Report post

There is a genetic research company doing studies on Parkinson's along with other conditions. Currently they are providing FREE DNA testing for people diagnosed with Parkinsons.

Visits www.23andme.com/pd/codereq and fill out the information requested and the company will send you a DNA kit free of charge. Once you provide your DNA they will test it and then will provide you with feedback.

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MY neurologist scheduled an MRI for my brain, because of symptoms that fit several neuro diseases,,, I will have the mri in about 2 weeks... hopefully I will get more diagnoses in June... and then send them in with my appeal stuff for that part of my claim..

latest symptom developing is numbness on left side of my body... already been suffering from uncontrollable moving and shaking and tremors for many years... last mri for the brain was on active duty for headaches from chemicals.. 30 years ago..... I am unable to hold a cup of water in left hand.. without the cup going wild and water everywhere..

feels very numb,, sometimes when I rest left arm turns into a limb that I must carry with my right hand until it comes back... not like sleeping, more like a dead arm.. he poked me with a needle and I ask him to push it in and sharpen it so I could feel it.. left foot the muscles often twist and look like prezels.. and hurt bad... knee totally goes bad and can't walk somedays after walking a short disance.. and I need to find out if the diabetes is starting again, from the pancreas disease.. legs are still swollen from the calf up..

fits symptoms of both Parkinsons and MS... the shaking .... pain.... moving my limbs....

cloneazapam seems to hellp alot for the wild kicking, but he cannot give any more proponolo because of the pancreas disease..

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Posted · Report post

MY neurologist scheduled an MRI for my brain, because of symptoms that fit several neuro diseases,,, I will have the mri in about 2 weeks... hopefully I will get more diagnoses in June... and then send them in with my appeal stuff for that part of my claim..

latest symptom developing is numbness on left side of my body... already been suffering from uncontrollable moving and shaking and tremors for many years... last mri for the brain was on active duty for headaches from chemicals.. 30 years ago..... I am unable to hold a cup of water in left hand.. without the cup going wild and water everywhere..

feels very numb,, sometimes when I rest left arm turns into a limb that I must carry with my right hand until it comes back... not like sleeping, more like a dead arm.. he poked me with a needle and I ask him to push it in and sharpen it so I could feel it.. left foot the muscles often twist and look like prezels.. and hurt bad... knee totally goes bad and can't walk somedays after walking a short disance.. and I need to find out if the diabetes is starting again, from the pancreas disease.. legs are still swollen from the calf up..

fits symptoms of both Parkinsons and MS... the shaking .... pain.... moving my limbs....

cloneazapam seems to hellp alot for the wild kicking, but he cannot give any more proponolo because of the pancreas disease..

I have been on Cloneazapam for some time for panic attacks at bed time. At my last Nuerologist appointment he increased my Cloneazpam from 2 pills at bed time to 2 pills at night plus 2 during the daytime. I started to kick wildly in bed and swing my fists while asleep. I too have the shaking, pain and moving of the limbs. I have already been Dx'd with PD. Have not bben able to write with one hand, drink without a lid, nor eat like a human since vietnam.

Please do not do like I did and file just for PD, if you are Dx'd for it, but you must file for every element of PD. If not, you will get what I did, 30%.

papa

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I have been on Cloneazapam for some time for panic attacks at bed time. At my last Nuerologist appointment he increased my Cloneazpam from 2 pills at bed time to 2 pills at night plus 2 during the daytime. I started to kick wildly in bed and swing my fists while asleep. I too have the shaking, pain and moving of the limbs. I have already been Dx'd with PD. Have not bben able to write with one hand, drink without a lid, nor eat like a human since vietnam.

Please do not do like I did and file just for PD, if you are Dx'd for it, but you must file for every element of PD. If not, you will get what I did, 30%.

papa

Since my claim is such a mess with 3 issues definitely (probably going to BVA) and 3 issues no decision yet from DRO hearing 2010, and at least 2 issues are related to neurology.. I will definitely listen to your advice.. I cannot add any issues to my claim until these are finished.. I can add any more tests I get to my current claim but will not open any new claims until these get through the system. The claims people.. already screwed up when I asked them to consider speeding up my claim as hardship, they must have gotten the claim file I gave them in April, just read it 5 weeks later in May,.. and thought I was filing a new claim, when 'I was only asking my current claims be treated as hardship..'.... they said something like we will not work on your claim until you tell us if these are new claims.. I was totally blown away and extremely Pissed when I got that letter a few days ago,..

My congressman's office.. responded also with a letter saying VA disability claim my case has been flagged for review every few months to see if there is progress.. but they didn't say anything about hardship..

There is nothing else i can do... The VA has a huge problem when they only communicate in one direction, no is and questions can be addressed if they refuse to communicate with Vets.. They never speak to vets, they just send letters out with bad news.. if the claims people would cal and say hey, I just want to know blah, blah, blah, it would clear up most of the problems in veterans files.. but for some reason, they just refuse to communicate.. When you send them anything, they twist it and turn it upside down trying to ruin your file, and your claim...

I sent back a new form and said those papers were asking for my claim to be treated as hardship for serious life threatening health issues and I do not want to die before they get to my claim.. I will definitely check with my VSO if the doctors find new evidence of more diseases like PD... and ask what they think I should do..

I already have doctors notes and diagnosis for several neuro diseases... and they go back many years... and more new dx come every year...

I am not quite sure about what every element is of the diagnosis... I already have a claim in for tremors, in fact it was re-opened, I had claimed it in 1997, but it was denied... the doctors diagnosed me while on active duty with tremors in 1980. Then a few years ago, I got a diagnosis of Myotonic Dystrophy,, (like Muscular Dystrophy). Also been diagnosed with distal polyneuropathy.. I also calimed MS, in 1997, but it too was denied..

I have to find out about the elements of PD.

does that mean a break down of each symptom? Or each seperate disease?

Like tremors? weakness? Numbness, balance? Muscles wasting?

The kicking and arms throwing,,, and flailing,, and bat wing arm flapping.. isn't the only problem, also twisting so bad the bones dislocate in the feet.. and toes..

there are times I cannot get words out when I speak. eat has been very hard for a long long time,, I also have not had teeth for 12 years..

The cloneazapam works great,,, it helps a whole bunch,, but the doctor cannot increase meds because of pancreas disease..

the tremors, shaking, muscle wasting...: etc..

Nurses and doctors observed me in my bed 24/7 for 6 months shaking so bad i could not hold objects, I had to wear armbands for such physical issues and prone to falling..

my neurologist confirmed they put those notes in my medical records...

lets see what the mri's show in the coming weeks.. I suspect they are looking for lesions..

I think my last mri of my brain was in Germany in 1980.. that was for the damage from chemicals headaches, and I also had a TBI from a head injury ( concussion) when i was assaulted by another service member.. I had him arrested.. I have had too many mri's, cat scan, x-rays and more to count.. hundreds,,

in 2008 I had at least 4 or 5 xrays, cat scan, etc per week for 6 months, now I have to get them every 6 months.. if not more..

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Since my claim is such a mess with 3 issues definitely (probably going to BVA) and 3 issues no decision yet from DRO hearing 2010, and at least 2 issues are related to neurology.. I will definitely listen to your advice.. I cannot add any issues to my claim until these are finished.. I can add any more tests I get to my current claim but will not open any new claims until these get through the system. The claims people.. already screwed up when I asked them to consider speeding up my claim as hardship, they must have gotten the claim file I gave them in April, just read it 5 weeks later in May,.. and thought I was filing a new claim, when 'I was only asking my current claims be treated as hardship..'.... they said something like we will not work on your claim until you tell us if these are new claims.. I was totally blown away and extremely Pissed when I got that letter a few days ago,..

My congressman's office.. responded also with a letter saying VA disability claim my case has been flagged for review every few months to see if there is progress.. but they didn't say anything about hardship..

There is nothing else i can do... The VA has a huge problem when they only communicate in one direction, no is and questions can be addressed if they refuse to communicate with Vets.. They never speak to vets, they just send letters out with bad news.. if the claims people would cal and say hey, I just want to know blah, blah, blah, it would clear up most of the problems in veterans files.. but for some reason, they just refuse to communicate.. When you send them anything, they twist it and turn it upside down trying to ruin your file, and your claim...

I sent back a new form and said those papers were asking for my claim to be treated as hardship for serious life threatening health issues and I do not want to die before they get to my claim.. I will definitely check with my VSO if the doctors find new evidence of more diseases like PD... and ask what they think I should do..

I already have doctors notes and diagnosis for several neuro diseases... and they go back many years... and more new dx come every year...

I am not quite sure about what every element is of the diagnosis... I already have a claim in for tremors, in fact it was re-opened, I had claimed it in 1997, but it was denied... the doctors diagnosed me while on active duty with tremors in 1980. Then a few years ago, I got a diagnosis of Myotonic Dystrophy,, (like Muscular Dystrophy). Also been diagnosed with distal polyneuropathy.. I also calimed MS, in 1997, but it too was denied..

I have to find out about the elements of PD.

does that mean a break down of each symptom? Or each seperate disease?

Like tremors? weakness? Numbness, balance? Muscles wasting?

The kicking and arms throwing,,, and flailing,, and bat wing arm flapping.. isn't the only problem, also twisting so bad the bones dislocate in the feet.. and toes..

there are times I cannot get words out when I speak. eat has been very hard for a long long time,, I also have not had teeth for 12 years..

The cloneazapam works great,,, it helps a whole bunch,, but the doctor cannot increase meds because of pancreas disease..

the tremors, shaking, muscle wasting...: etc..

Nurses and doctors observed me in my bed 24/7 for 6 months shaking so bad i could not hold objects, I had to wear armbands for such physical issues and prone to falling..

my neurologist confirmed they put those notes in my medical records...

lets see what the mri's show in the coming weeks.. I suspect they are looking for lesions..

I think my last mri of my brain was in Germany in 1980.. that was for the damage from chemicals headaches, and I also had a TBI from a head injury ( concussion) when i was assaulted by another service member.. I had him arrested.. I have had too many mri's, cat scan, x-rays and more to count.. hundreds,,

in 2008 I had at least 4 or 5 xrays, cat scan, etc per week for 6 months, now I have to get them every 6 months.. if not more..

For PD you have to file seperate for tremors, rigidity, inbalance, lack of taste and smell, contipation, and I know there are more. But, what gets my butt is that people who file under Social Security are considered totally disabled with PD. I told my Neurologist that the VA gave me 30%, he said there is no such thing as 30% PD. It is 100%.

Papa

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I was searching here and around about diabetes, Parkinsons, and tremors, pancreas, etc..

it appears that that people here, usually only talk about one thing, and not a combination of symptoms, diseases, etc... I guess I am a rare case where I have either been diagnosed with or have symptoms of pancreas disease, tremors,, diabetes symptoms (had to have insulin shots a few years ago, but currently not..)... I am looking to see if any others have many disease together... but apparently, not many others do... just me... (like i said, I have a brain MRI coming up next week..). so maybe more answers... and my nightmare appeals that drag on..

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